The Running Thread--2024

Well, it turns out “hypermobile” isn’t just an observation: it’s a DIAGNOSIS. Literally nobody told me that: I found it while looking through my clinical notes, mentioned it to a friend who has Ehlers-Danlos Syndrome, and she hooked me up with a doctor who specializes in EDS and Hypermobility Spectrum Disorder. I fit all criteria for HSD. And that diagnosis finally got me to the appropriate information for managing it.

Know how wonderful it can feel to finally get a diagnosis. Our 18 y/o DD has hypermobile EDS and I've run Marathon Weekend the last couple years raising money for the Ehlers-Danlos Society. Feel free to ping me if I can provide you any of the resources we've come across in dealing with EDS.
 
Know how wonderful it can feel to finally get a diagnosis. Our 18 y/o DD has hypermobile EDS and I've run Marathon Weekend the last couple years raising money for the Ehlers-Danlos Society. Feel free to ping me if I can provide you any of the resources we've come across in dealing with EDS.
Thank you! Definitely, just knowing what I’m dealing with is a help: at least I understand now why certain exercises are problematic that seem like they shouldn’t be. I have two close friends with EDS, one of them hEDS, and the EDS websites & studies they’ve shared have been eye-opening! I’d love any additional resources you can share.
 
I’d love any additional resources you can share.

I will pull some stuff together and message you. Sounds like you've already got one of the most imprtant things though which are people within the "EDS club" that can help. One of the most frustrating aspects for us has been finding doctors who know about EDS (or at least don't dismiss it). Our DD had what's known as the EDS trifecta (EDS, POTS and Mast Cell Activation Syndrome) so it can make figuring issues out and then the right treatment a challenge. Connecting with our Georgia group (via Facebook) has been awesome as we all share the names of specialists when we need a new one. We litterally have to travel to NC for her gastroenteroloigist as there was nobody with experience in Atlanta but would have never found him without the help of those in that group.
 
Quick question for all my self-diagnosing enablers on here. Has anyone dealt with sharp pain just below their armpit while running? Not like a side stitch, much higher at the top of the rib cage.

I've had this occur in the past when losing weight. It seems like when I drop below a certain weight, the area just below the armpit feels like it's bouncing and pulling on something underneath that's causing a sharp pain, but there's nothing apparent that's being aggravated. In the past, it's subsided pretty quickly and not returned. This time it feels like it's sticking around longer, though, having bothered me for 2-3 weeks now.

So far I've tried a compression undershirt (no affect), KT Tape to pull up and stop the jiggle, and Biofreeze under the KT Tape. The KT Tape/Biofreeze combo has been the best, but the tape has a tendency to come unstuck during the run, leading to unfortunate consequences.

Any suggestions for how to deal with this in the short and longer term are welcome. I've got a marathon next weekend and the prospect of having this hurting for 4-5 hours is not appealing. Thanks!

ETA: My next plan was to try a snug Ace bandage across my upper chest to prevent the bounce tomorrow. I'm not thrilled by that prospect because I'll be solo for my race and am not sure about getting it applied and snug enough by myself.
 
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Quick question for all my self-diagnosing enablers on here. Has anyone dealt with sharp pain just below their armpit while running? Not like a side stitch, much higher at the top of the rib cage.

I've had this occur in the past when losing weight. It seems like when I drop below a certain weight, the area just below the armpit feels like it's bouncing and pulling on something underneath that's causing a sharp pain, but there's nothing apparent that's being aggravated. In the past, it's subsided pretty quickly and not returned. This time it feels like it's sticking around longer, though, having bothered me for 2-3 weeks now.

So far I've tried a compression undershirt (no affect), KT Tape to pull up and stop the jiggle, and Biofreeze under the KT Tape. The KT Tape/Biofreeze combo has been the best, but the tape has a tendency to come unstuck during the run, leading to unfortunate consequences.

Any suggestions for how to deal with this in the short and longer term are welcome. I've got a marathon next weekend and the prospect of having this hurting for 4-5 hours is not appealing. Thanks!

ETA: My next plan was to try a snug Ace bandage across my upper chest to prevent the bounce tomorrow. I'm not thrilled by that prospect because I'll be solo for my race and am not sure about getting it applied and snug enough by myself.
I don’t have much to say but when having a massage, it seems that my serratus is always knotted.
 
Just wanna say, did a sprint tri in Clermont. Did Epcot and an overnight at OKW night before. Super fun race and only 40 min from Disney!
Awesome! I am signing up for my sprint this week. And I think that I have been coerced into signing up for Iron Man Texas 2025. I have been looking for a bike on all the classified type apps and sites. Trying to find an XL frame is not an easy task.
 
Awesome! I am signing up for my sprint this week. And I think that I have been coerced into signing up for Iron Man Texas 2025. I have been looking for a bike on all the classified type apps and sites. Trying to find an XL frame is not an easy task.
It is not. I almost had a custom one made when I was thinking about tris, but then backed out. Although I did learn from the training I probably would have been a devastating swimmer
 
Awesome! I am signing up for my sprint this week. And I think that I have been coerced into signing up for Iron Man Texas 2025. I have been looking for a bike on all the classified type apps and sites. Trying to find an XL frame is not an easy task.
If you get a bike fit from one of the local fitters like Philip Shama, he should be able to tell you exactly what bike/frame will be best for you. Also might be able to help you find one through local tri clubs and training groups.
 

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